Blog

  • Blog, schedules

    No Schedule for Jacob to Use This Week? No Peace! Autism Challenges 🧩

    The Importance of Managing Autism Routines and Schedules 🧩

    We all have off days or weeks, and I’m no different. At the beginning of this journey, I didn’t have routines or scheduled activities for Jacob. I just didn’t know any better. We have to be able to manage autism routines when our children are not able to manage their day without meltdowns or chaos.

    But now that I do, I understand the importance of always having a schedule and plans for Jacob. With consistent routines, the chaos is gone. 🌟

    managing autism routines with schedules, day by day roadmap
    Roadmap to success! Use a schedule. Be consistent, celebrate all wins!

    The Power of the Schedule

    managing autism routines with schedules, Jacob's clothes need to be on the schedule
    Pack the sensory friendly clothes, work and headphones!

    📅 We know that schedules help keep down anxiety, aid with emotional regulation, and help Jacob enjoy his day, just to name a few of the huge benefits. So, what happens when I’ve had a yucky day, and now it’s time to fill the zipper bags for the weekly work? Or, I didn’t put the haircut, manicure, and pedicure on the monthly schedule, and now it’s needed, and I’m not in the mood to complete these tasks???

    Managing Unplanned Changes

    📆 Well, normally I can just show him the monthly calendar and add the haircut to the following day, and he’s okay with that. But if the nails are too long and bothering him, he will probably pick at them. This can be a big problem because Jacob easily gets ingrown toenails, and he will pick if it’s bothering him. See this previous post:3 ways to help your child on the autism spectrum navigate doctor visits more smoothly

    managing autism routines with schedules, Jakes manicures need to be on the schedule
    Jacob’s big toe became infected due to picking at skin around toenail that was bothering him.

    Managing Autism Routines

    🔧 Now, I just caused a major problem because I didn’t have my act together today. That’s just one example of life falling apart because I just let the schedule go and didn’t do my part. Also, if it’s not done and I’m grumpy because he’s not handling his day well, then I also know it’s partly my fault. Now, if I can fix and get us back on track, then, of course, I do.

    🔄 If, however, he spirals into an emotional meltdown and dances on everyone’s last nerve and gets in trouble before I can course correct, then I have to punish him by taking away his ability to buy his Amazon purchase at the end of the week for completing work and having a great week.

    Consistency Is Key

    🚫 If I’m not consistent in rewarding good behavior and holding back rewards when he hasn’t stayed in check, then the whole system breaks down.

    🤷‍♀️ Now, if I have to punish by not allowing the Amazon purchase he’s supposed to get on Friday, I feel incredibly guilty because I know I could have helped him more by having that schedule and work in place to guide his week.

    📝 Sometimes though, life gets in the way. You start thinking he’s so used to the schedule he’ll be alright for one day. Maybe you just plain forget because you’re tired or sick. Just self-correct as soon as possible and get on track so your child is set up for success. Because you don’t want to carry guilt that you could have possibly prevented the whole scenario!

    Give Yourself Some Grace

    💖 Give yourself some grace. Remember if you don’t have a plan for your child, they will have one for you!

    So, let’s keep those schedules in check and ensure our days are filled with structure and peace.

    Read More

  • Blog, schedules

    Want to know how I redirect Jacob when our weekend is different? Autism Challenges 🧩

    autism-weekend-challenges
    #autism-weekend-challenges

    Autism Challenges on Weekends!

    Autism challenges on weekends, transitions! Picture this: Jacob is super excited because his big brother, Nicholas, is coming home for a visit. He’s been chanting “Nicholas home!” with the enthusiasm only a child with autism can muster, multiple times a day for weeks. Now, don’t get me wrong, Nicholas is a grown man, currently neck-deep in a Ph.D. program at NC State. He hasn’t lived at home since 2013. But, in Jacob’s world, none of that matters. His favorite person is coming home, and the excitement is palpable.

    The Weekend Twist: Routine Disarray!

    However, there’s a twist to this tale. While Jacob absolutely adores having his brother home, his well-oiled routine is thrown into a delightful, albeit chaotic, disarray. You see, everyone on the autism train—me, my husband, Nicholas, and even our trusty dog—needs to help Jacob navigate this transition into different routines and family activities.

    Movie Quotes: Our Secret Weapon!

    So, how do we manage these autism challenges on weekends? Well, it turns out that movie quotes are our secret weapon. Jacob is a movie buff, and movie quotes are like nuggets of gold to him. Now, I must admit, my husband and Nicholas are way better at this game than I am. Not only do they recite the lines, but they also throw in character voices to make the quotes come alive. Jacob absolutely loves it, and the power of a well-placed movie quote can turn an impending meltdown into fits of laughter.

    Routine vs. Brother Time: Balancing Act!

    Hashtag Family
    #family, #friends

    Jacob is a creature of habit, and he likes things a certain way, every day. Take, for instance, his TV time. He’s used to having free rein over the big TV in the living room when no one else is using it. But when everyone’s home, that TV becomes a battleground. Jacob wants his brother home, but he also wants his routine, and this can lead to some grumpiness and anxiety.

    The Family Team: Redirection and Smiles!
    schedule-fun-jacob-is-the-hulk-barnes-and-noble
    Jacob having fun at Barnes and Noble after a week of completed work!

    That’s when the whole family jumps into action, taking turns to redirect Jacob’s focus and ensure the weekend stays on a positive note. We know that things can quickly go south when you’re dealing with autism challenges. Children on the spectrum often struggle when their routines are disrupted, and when you throw in sensory sensitivities, emotional regulation difficulties, and perhaps a sprinkle of OCD tendencies, you’ve got yourself a perfect storm. How my husband changes Jacob’s bad mood with music! #musicandautism.

    The Teamwork Tactic: Smiles and Snacks!

    Our secret sauce is teamwork, no autism challenges on weekends. Together, as a family, we brainstorm fun ways to keep the weekend moving along smoothly. If Jacob needs a break from the hubbub, I’ll usually put him in the car, and off we go on a quick errand to the grocery store or, his personal favorite, Chick-fil-A! These little outings provide him with the sensory input and routine he craves.

    Schedules, Calendars, and Celebrations: Our Winning Trio!

    We also rely on his trusty schedule, a calendar that gently introduces the changes coming his way, and a hefty dose of assistance with transitions and redirection. And, of course, we sprinkle in some celebrations—maybe some cookies to bake to mark the occasion of Nicholas being home for a visit. Here is a previous blog post: How Simple Planning Ahead Can Save the Day When Working with Someone Who Has Autism!

    Jacob’s Weekend Adventure: Laughter and Love!

    So, to all my fellow parents navigating the uncharted waters of autism challenges during weekends, take heart. With a bit of humor, a whole lot of love, and a bag of movie quotes, we’re making our way through, one smile at a time. 3 Top Challenges of having an adult son with autism.#autismchallenges🧩🌈✨

    Join the Conversation!

    Here is another article: https://www.nidcd.nih.gov/health/autism-spectrum-disorder-communication-problems-children

    Stay tuned for more tales from Autism Island! Got any tricks up your sleeve for managing autism challenges on weekends? Share your stories and tips below! 📢💬

    Still more? download my ebook! https://educatingjacob.myflodesk.com/tfgvkumbkg

    Read More

  • Blog, schedules

    3 Ways Jacob’s Monthly Calendar and Daily Schedule Work on Autism Island!

    Jacob’s Monthly Calendar: Autism Island Daily Schedule

    Jacob’s monthly calendar is like a crystal ball, but instead of predicting the future, it prepares him for it. On Autism Island the daily schedule is essential! This calendar isn’t your ordinary one; it’s a lifeline for Jacob, especially when it comes to navigating the twists and turns of daily life on Autism Island.

    The Holiday Countdown:

    Most people use their calendars to mark birthdays and holidays, but for Jacob, it’s a countdown. He eagerly anticipates those special days, and his calendar helps him keep track. When he sees a circled date approaching, he knows it’s time for something exciting.

    Beyond the Week:

    Unlike his weekly schedule, which is all about the here and now, the monthly calendar zooms out. It gives Jacob a glimpse of upcoming events that aren’t part of his daily schedule or weekly routine. Take, for example, doctor’s appointments. With a quick glance, he can see when they’re scheduled, allowing him to prepare for any changes to his regular routine.

    Personal Maintenance:

    doctor's office Jacob's ingrown toenail
    Jacob’s big toe became infected due to picking at skin around toenail that was bothering him.

    We all have those tasks that pop up irregularly but can’t be ignored. For Jacob, it’s the dreaded manicure and pedicure sessions. While it may seem trivial, these appointments are essential. For him, overgrown nails trigger sensory sensitivities, leading to nail and skin picking, which can ultimately result in ingrown toenails. Yikes! So, his calendar reminds us to keep those nails in check.

    I don’t need to put my manicure and pedicure on a calendar because I just take care of it when I feel like taking care of it. But for Jacob, if he starts picking at a nail because it is all of a sudden annoying him we have a big problem. That’s where having a schedule that puts item of regular maintenance down.

    Check out this, our dream residential/day program geared to autism: https://islandautism.org/about-us/island-autism-center /

    Pills and Prevention:

    Managing epilepsy is no small feat. Jacob has a medication regimen that’s crucial for seizure control. His trusty pillbox helps, but it’s his calendar that ensures we never run out of meds. It serves as a reminder to order and refill prescriptions promptly, sparing us any seizure-related adventures. It also reminds me to fill his weekly pill box so it’s ready and accessible to Jacob.

    Jacob’s Weekly Schedule: The Comfort of Routine

    Now, let’s dive into Jacob’s weekly schedule. To many, it might seem monotonous, but for Jacob, it’s a source of comfort and happiness.

    Groundhog Days:
    For Jacob, the consistency of his daily routine brings him a sense of calm.
    For Jacob, the consistency of his daily routine brings him a sense of calm.

    Imagine waking up to a world that’s slightly different every day. Sounds exhausting, right? For Jacob, the consistency of his daily routine brings him a sense of calm. His days follow a structured pattern, from breakfast to meds, schoolwork to chores, and everything in between. Autism mom support, what happens when being a hands on doesn’t stop at 18?

    Mom’s Decision Fatigue:

    As a mom, teacher, and wife, I wear many hats. My daily life can be a juggling act. Jacob’s schedule isn’t just his lifeline; it’s mine too. The more organized I am, the smoother things run for the whole family.

    Autism Island daily schedule, we have so much to keep track of that a schedule is needed to calm the chaos!
    All the different hats we wear!

    So, while Jacob’s calendar and weekly schedule might seem unusual to some, they are the glue that holds our lives together here on Autism Island. They provide predictability, reduce anxiety, and ensure we’re prepared for whatever adventures come our way. Educating Jacob: The Power of Communication in Autism Spectrum Disorder

    Jacob’s monthly and daily schedules work for him:

    1.  Long-Range Planning: Jacob’s monthly calendar helps him anticipate and prepare for longer-term changes and events, such as holidays, birthdays, and doctor’s appointments. It provides him with a visual overview of upcoming activities and transitions, reducing anxiety associated with unexpected changes.

    2. Routine and Predictability: Jacob’s weekly schedule maintains a consistent daily routine, including tasks like breakfast, schoolwork, chores, and free time. This routine brings him comfort and stability, reducing stress and anxiety. It also helps his family manage their busy lives effectively.

    3. Support for Medication and Health Needs: The calendars serve as reminders for essential tasks like medication management. They ensure that Jacob’s epilepsy medication is refilled on time, preventing the risk of seizures. Additionally, the schedule helps Jacob with sensory sensitivities, ensuring his nail care, which can be challenging due to his condition, is not overlooked.

    Whether you’re navigating Autism Island or just looking for ways to bring more structure into your family’s life, take a page from Jacob’s book. Embrace the power of planning, and you might find that a well-structured calendar and routine can be your best allies. Tag us on Facebook or Instagram using #AutismParenting, #SpecialNeedsSuccess, or #MonthlyCalendarMagic

    Want more? Download my ebook and follow us on Social Media! https://educatingjacob.myflodesk.com/tfgvkumbkg

    Read More

  • Blog, schedules

    Teaching my son with autism to read was a huge accomplishment!

    Jacob completing a writing assignment on his chalkboard wall in his room.
    Jacob doing a writing assignment!

    A Surprising Start to Our Autism Journey

    When autism hit our family, it hit like a ton of bewildering bricks. Teaching my son to read, speak or just about anything was a challenge. We were as clueless as clueless could be, armed with nothing more than our viewing of “Rain Man” as our crash course in autism. No mentors, no guidebooks, just us, trying to make sense of it all. Our teaching that worked with our first son did not work. Teaching Nicholas to do almost anything including reading was a breeze! https://www.beginlearning.com/parent-resources/how-to-teach-a-child-to-read/

    Teaching My Son to Read

    But, hey, we did have a friend who homeschooled her own kids. And that, my friends, was our ticket to the wild world of homeschooling. Jacob had done a stint in public school for preschool and kindergarten. As those crucial early years came to a close, we decided to take the plunge and bring him home for homeschooling. I researched and bought materials for schooling my children and got started.

    Diving into the Deep End of Homeschooling

    So, there I was, diving headfirst into this ocean of uncertainty. I read books, surfed websites, and clung to my homeschooling guru friend like a lifebuoy. I ordered curriculum for two kids because my older son, Nicholas, wanted in on the action. He became the extracurricular activities and book picker, and off we went, wading into uncharted waters.

    Officially Homeschooling

    We registered ourselves with the state as a homeschool, gave ourselves a name (because why not?), and I became the official administrator. Nicholas was a breeze to teach, but Jacob, oh Jacob, with his autism quirks and speech challenges, was a different story.

    Creative Homeschooling Tactics

    Jacobs-activities-lined-the-couch-with-an-all-done-bin-on-the-floor
    Jacob’s activities lined the couch with an all done bin on the floor, very easy for him to understand!

    Our homeschooling sessions involved singing the ABCs during bath time (foam letters included!), bouncing on a rebounder while tackling flashcards, and counting and word games on the outdoor swing. Movement was Jacob’s magic ingredient for speech, so we embraced it wholeheartedly. It also made learning a lot more fun. This link shows how comprehension is challenging for our children with autism.  https://www.readingrockets.org/topics/autism-spectrum-disorder/articles/reading-comprehension-and-autism-primary-general-education

    The Calm in the Storm

    Nicholas, bless his heart, was the calm amidst our storm. Some days, Jacob and I would wrap up our lessons in tears. It usually ended with Jacob going to his room, me heading to mine, and Nicholas taking charge of soothing his brother. He’d build intricate train tracks and cue up a Thomas the Tank Engine movie. And then, he’d come to me with an offer of popcorn and Dr. Pepper because he knew they were my favorites. Smart kid!

    Not a Teacher Yet

    I wasn’t a teacher when we started this adventure; I decided to become a Special Education teacher later, thinking I needed the qualification to help my son. In reality, I didn’t. Jacob and I tackled the hard part before I ever got that degree. We taught each other.

    The Proud Moment

    I was just a mom, desperate and determined not to give up. I knew Jacob better than anyone, and I used that knowledge to our advantage. We turned every opportunity into a learning moment and incorporated everything he loved.

    Jacob reading, also part of his daily schedule.
    Jacob couldn’t read yet, but it was still part of his daily schedule!

    Teaching Triumph

    Teaching Jacob to read is a greater source of pride for me than my Master’s degree in Special Education. I taught him to read and write before I even had that degree. The Jacob School of Life taught me more than any classroom could.

    Challenges and Rewards

    Teaching any child to read is no walk in the park, and when you add disabilities to the mix, it’s a real uphill climb. You’ve got to connect with your student on a profound level, using every trick in the book to make it easier for them. Find ways to incorporate what they already love into the learning process.

    Celebrating Small Wins

    Jacob loved movies, trains, and video games (like father, like son). He adored movement and water, so we used all these things every single day until that light bulb moment finally happened. We celebrated every tiny milestone like it was the Super Bowl, and let me tell you, the victory dances were legendary.

    Don’t Give Up

    On the tough days, the ones that ended with me retreating to my room, tears streaming, feeling utterly unworthy, I didn’t give up. I’m here to tell you, you’re worthy, and your child needs you. Don’t throw in the towel; don’t give in. Celebrate every single accomplishment, no matter how minuscule. Because when you look back, you’ll see just how far you’ve come, and it’ll be a sight to behold.

    Tired and frustrated shows up for all moms
    Tired and frustrated? Try something new, create a schedule“How to create a personalized schedule for children with autism”!

    Read More