Before Jacob’s autism diagnosis, we were bewildered by his lack of attention, clueless about his hyperactivity. But hey, at least he helped with cleaning – albeit based on my tone and body language, not my words! 😅
Understanding Energetic Behavior:
Some kids are like perpetual motion machines. If Jacob ever stopped moving, I’d check his temperature! Turns out, high energy in autism can be due to a myriad of factors – genetics, sensory needs, or simply being a kid! 🏃♂️
Consistency is key! Our days got brighter when we embraced structured routines. With visual schedules, even non-readers like Jacob can follow along. Just keep it simple and predictable, like Jacob’s favorite superhero shirts – they never fail to save the day! 💪
Exercise isn’t just for the gym – it’s for Jake’s language development too! Who knew bouncing on a rebounder could teach him words? With close captioning and superhero workout shirts, learning is an adventure in itself! 🦸♂️
Remember when you cross midline you are activating the brain and creating new connections because it engages both sides of the brain. Exercise and movement are a win-win for our kids! Windmills are a good exercise that crosses the midline.🕺🏾
When the energy’s high, and emotions are frayed, it’s time for a sensory break! From rice bins to water beads, sensory activities are our secret weapon. And as a mom and teacher, I’ve got a sixth sense for recognizing when it’s time to hit pause and recharge! ⏸️
C.A.L.M:
C.A.L.M.
Consistent Action Forward With patience, Always Celebrate Wins, support, Learning to Create Schedules/Procedures without Using a Lot of Language, and Mindset. Use the CALMmodel and a dash of creativity, parents of energetic children with autism can navigate the highs and lows of parenting with grace and humor. After all, it’s not just about surviving – it’s about thriving together! 🌟
The Importance of Managing Autism Routines and Schedules 🧩
We all have off days or weeks, and I’m no different. At the beginning of this journey, I didn’t have routines or scheduled activities for Jacob. I just didn’t know any better. We have to be able to manage autism routines when our children are not able to manage their day without meltdowns or chaos.
But now that I do, I understand the importance of always having a schedule and plans for Jacob. With consistent routines, the chaos is gone. 🌟
Roadmap to success! Use a schedule. Be consistent, celebrate all wins!
The Power of the Schedule
Pack the sensory friendly clothes, work and headphones!
📅 We know that schedules help keep down anxiety, aid with emotional regulation, and help Jacob enjoy his day, just to name a few of the huge benefits. So, what happens when I’ve had a yucky day, and now it’s time to fill the zipper bags for the weekly work? Or, I didn’t put the haircut, manicure, and pedicure on the monthly schedule, and now it’s needed, and I’m not in the mood to complete these tasks???
Managing Unplanned Changes
📆 Well, normally I can just show him the monthly calendar and add the haircut to the following day, and he’s okay with that. But if the nails are too long and bothering him, he will probably pick at them. This can be a big problem because Jacob easily gets ingrown toenails, and he will pick if it’s bothering him. See this previous post:3 ways to help your child on the autism spectrum navigate doctor visits more smoothly
Jacob’s big toe became infected due to picking at skin around toenail that was bothering him.
Managing Autism Routines
🔧 Now, I just caused a major problem because I didn’t have my act together today. That’s just one example of life falling apart because I just let the schedule go and didn’t do my part. Also, if it’s not done and I’m grumpy because he’s not handling his day well, then I also know it’s partly my fault. Now, if I can fix and get us back on track, then, of course, I do.
🔄 If, however, he spirals into an emotional meltdown and dances on everyone’s last nerve and gets in trouble before I can course correct, then I have to punish him by taking away his ability to buy his Amazon purchase at the end of the week for completing work and having a great week.
Consistency Is Key
🚫 If I’m not consistent in rewarding good behavior and holding back rewards when he hasn’t stayed in check, then the whole system breaks down.
🤷♀️ Now, if I have to punish by not allowing the Amazon purchase he’s supposed to get on Friday, I feel incredibly guilty because I know I could have helped him more by having that schedule and work in place to guide his week.
📝 Sometimes though, life gets in the way. You start thinking he’s so used to the schedule he’ll be alright for one day. Maybe you just plain forget because you’re tired or sick. Just self-correct as soon as possible and get on track so your child is set up for success. Because you don’t want to carry guilt that you could have possibly prevented the whole scenario!
Give Yourself Some Grace
💖 Give yourself some grace. Remember if you don’t have a plan for your child, they will have one for you!
So, let’s keep those schedules in check and ensure our days are filled with structure and peace.
Autism challenges on weekends, transitions! Picture this: Jacob is super excited because his big brother, Nicholas, is coming home for a visit. He’s been chanting “Nicholas home!” with the enthusiasm only a child with autism can muster, multiple times a day for weeks. Now, don’t get me wrong, Nicholas is a grown man, currently neck-deep in a Ph.D. program at NC State. He hasn’t lived at home since 2013. But, in Jacob’s world, none of that matters. His favorite person is coming home, and the excitement is palpable.
The Weekend Twist: Routine Disarray!
However, there’s a twist to this tale. While Jacob absolutely adores having his brother home, his well-oiled routine is thrown into a delightful, albeit chaotic, disarray. You see, everyone on the autism train—me, my husband, Nicholas, and even our trusty dog—needs to help Jacob navigate this transition into different routines and family activities.
Movie Quotes: Our Secret Weapon!
So, how do we manage these autism challenges on weekends? Well, it turns out that movie quotes are our secret weapon. Jacob is a movie buff, and movie quotes are like nuggets of gold to him. Now, I must admit, my husband and Nicholas are way better at this game than I am. Not only do they recite the lines, but they also throw in character voices to make the quotes come alive. Jacob absolutely loves it, and the power of a well-placed movie quote can turn an impending meltdown into fits of laughter.
Routine vs. Brother Time: Balancing Act!
#family, #friends
Jacob is a creature of habit, and he likes things a certain way, every day. Take, for instance, his TV time. He’s used to having free rein over the big TV in the living room when no one else is using it. But when everyone’s home, that TV becomes a battleground. Jacob wants his brother home, but he also wants his routine, and this can lead to some grumpiness and anxiety.
The Family Team: Redirection and Smiles!
Jacob having fun at Barnes and Noble after a week of completed work!
That’s when the whole family jumps into action, taking turns to redirect Jacob’s focus and ensure the weekend stays on a positive note. We know that things can quickly go south when you’re dealing with autism challenges. Children on the spectrum often struggle when their routines are disrupted, and when you throw in sensory sensitivities, emotional regulation difficulties, and perhaps a sprinkle of OCD tendencies, you’ve got yourself a perfect storm. How my husband changes Jacob’s bad mood with music! #musicandautism.
The Teamwork Tactic: Smiles and Snacks!
Our secret sauce is teamwork, no autism challenges on weekends. Together, as a family, we brainstorm fun ways to keep the weekend moving along smoothly. If Jacob needs a break from the hubbub, I’ll usually put him in the car, and off we go on a quick errand to the grocery store or, his personal favorite, Chick-fil-A! These little outings provide him with the sensory input and routine he craves.
Schedules, Calendars, and Celebrations: Our Winning Trio!
We also rely on his trusty schedule, a calendar that gently introduces the changes coming his way, and a hefty dose of assistance with transitions and redirection. And, of course, we sprinkle in some celebrations—maybe some cookies to bake to mark the occasion of Nicholas being home for a visit. Here is a previous blog post: How Simple Planning Ahead Can Save the Day When Working with Someone Who Has Autism!
Jacob’s Weekend Adventure: Laughter and Love!
So, to all my fellow parents navigating the uncharted waters of autism challenges during weekends, take heart. With a bit of humor, a whole lot of love, and a bag of movie quotes, we’re making our way through, one smile at a time. 3 Top Challenges of having an adult son with autism.#autismchallenges🧩🌈✨
Stay tuned for more tales from Autism Island! Got any tricks up your sleeve for managing autism challenges on weekends? Share your stories and tips below! 📢💬
Jacob’s Monthly Calendar: Autism Island Daily Schedule
Jacob’s monthly calendar is like a crystal ball, but instead of predicting the future, it prepares him for it. On Autism Island the daily schedule is essential! This calendar isn’t your ordinary one; it’s a lifeline for Jacob, especially when it comes to navigating the twists and turns of daily life on Autism Island.
The Holiday Countdown:
Most people use their calendars to mark birthdays and holidays, but for Jacob, it’s a countdown. He eagerly anticipates those special days, and his calendar helps him keep track. When he sees a circled date approaching, he knows it’s time for something exciting.
Beyond the Week:
Unlike his weekly schedule, which is all about the here and now, the monthly calendar zooms out. It gives Jacob a glimpse of upcoming events that aren’t part of his daily schedule or weekly routine. Take, for example, doctor’s appointments. With a quick glance, he can see when they’re scheduled, allowing him to prepare for any changes to his regular routine.
Personal Maintenance:
Jacob’s big toe became infected due to picking at skin around toenail that was bothering him.
We all have those tasks that pop up irregularly but can’t be ignored. For Jacob, it’s the dreaded manicure and pedicure sessions. While it may seem trivial, these appointments are essential. For him, overgrown nails trigger sensory sensitivities, leading to nail and skin picking, which can ultimately result in ingrown toenails. Yikes! So, his calendar reminds us to keep those nails in check.
I don’t need to put my manicure and pedicure on a calendar because I just take care of it when I feel like taking care of it. But for Jacob, if he starts picking at a nail because it is all of a sudden annoying him we have a big problem. That’s where having a schedule that puts item of regular maintenance down.
Managing epilepsy is no small feat. Jacob has a medication regimen that’s crucial for seizure control. His trusty pillbox helps, but it’s his calendar that ensures we never run out of meds. It serves as a reminder to order and refill prescriptions promptly, sparing us any seizure-related adventures. It also reminds me to fill his weekly pill box so it’s ready and accessible to Jacob.
Jacob’s Weekly Schedule: The Comfort of Routine
Now, let’s dive into Jacob’s weekly schedule. To many, it might seem monotonous, but for Jacob, it’s a source of comfort and happiness.
Groundhog Days:
For Jacob, the consistency of his daily routine brings him a sense of calm.
Imagine waking up to a world that’s slightly different every day. Sounds exhausting, right? For Jacob, the consistency of his daily routine brings him a sense of calm. His days follow a structured pattern, from breakfast to meds, schoolwork to chores, and everything in between. Autism mom support, what happens when being a hands on doesn’t stop at 18?
Mom’s Decision Fatigue:
As a mom, teacher, and wife, I wear many hats. My daily life can be a juggling act. Jacob’s schedule isn’t just his lifeline; it’s mine too. The more organized I am, the smoother things run for the whole family.
All the different hats we wear!
So, while Jacob’s calendar and weekly schedule might seem unusual to some, they are the glue that holds our lives together here on Autism Island. They provide predictability, reduce anxiety, and ensure we’re prepared for whatever adventures come our way. Educating Jacob: The Power of Communication in Autism Spectrum Disorder
Jacob’s monthly and daily schedules work for him:
1. Long-Range Planning: Jacob’s monthly calendar helps him anticipate and prepare for longer-term changes and events, such as holidays, birthdays, and doctor’s appointments. It provides him with a visual overview of upcoming activities and transitions, reducing anxiety associated with unexpected changes.
2. Routine and Predictability: Jacob’s weekly schedule maintains a consistent daily routine, including tasks like breakfast, schoolwork, chores, and free time. This routine brings him comfort and stability, reducing stress and anxiety. It also helps his family manage their busy lives effectively.
3. Support for Medication and Health Needs: The calendars serve as reminders for essential tasks like medication management. They ensure that Jacob’s epilepsy medication is refilled on time, preventing the risk of seizures. Additionally, the schedule helps Jacob with sensory sensitivities, ensuring his nail care, which can be challenging due to his condition, is not overlooked.
Whether you’re navigating Autism Island or just looking for ways to bring more structure into your family’s life, take a page from Jacob’s book. Embrace the power of planning, and you might find that a well-structured calendar and routine can be your best allies. Tag us on Facebook or Instagram using #AutismParenting, #SpecialNeedsSuccess, or #MonthlyCalendarMagic
