Feeling isolated, broke, and chaos within the family? You’re not alone!
Autism Island:
Welcome to Autism Island! Feeling like you’re stranded here? Don’t worry, you’re in good company. It’s a place of isolation, occasional chaos, and surprise financial storms. But hey, we’ve got humor and camaraderie to navigate these turbulent seas of parenting a child with autism.
Navigating the Island of Isolation:
Ever had that moment when your child plays solo with no friends in sight? Yeah, we’ve all been there. Back in the day, I had these superhero friends who’d drop by after church. Kids played, and Jacob did his solo thing. Fond memories, but boy, do I get the isolation part.
Now that all the kids are grown, there’s no one coming over after church to eat lunch and hang out. Going out with our friends are tag team matches between my husband and I.
A Night on the Town? Easier Said Than Done:
Thinking of a night out with friends or a family trip? Sounds easy, right? Well, toss autism into the mix, and it’s like embarking on a complex mission. New places, new routines – it’s practically a city of anxiety. And family gatherings? More like family stress-fests, with constant mental scanning for potential meltdowns or hidden dangers.
Financial Rollercoaster:
Now, here’s the sneaky monster – the cost. Therapies, treatments, some not even approved. Insurance? Nope, they just shrugged and left us drowning in bills. I still remember that bloodwork bill that could’ve bought a small car. We couldn’t afford it. Thank heavens for family pitching in!
P.S. Insurance only covered speech therapy initially, and even that had co-pays. The struggle was real.
Sharing the Load:
Ever felt guilty about turning down invites? Let’s stop that nonsense! You’re not alone in the tag-team hustle with your partner. I mean, who wouldn’t love to hit the movies or kick back? But if it’s just not feasible, it’s not. We’ve all been there. Set some boundaries, drop that guilt, and grab a good book, run a soothing bath, or rent a hilarious comedy. You deserve it!
Beach Trips and “Me” Monsters:
Family vacations? Sure, we’ve done those. But it’s no leisurely stroll on the beach; it’s more like a 2.5-hour “Are we there yet?” chorus. And when you finally hit the sand, brace yourself for the inflatable alligator incident. Yep, the life of an autism parent is a unique adventure. Ask Granny Jane; she’ll regale you with tales of the inflatable alligator incident. Jake didn’t have one the first year, but guess who got him one the second year?
The Support Dilemma:
Respite care – sounds fantastic, right? Well, finding someone you trust, who truly understands your child’s unique needs, is like hunting for treasure. Autistic kids can’t always spill the beans on what happens when you’re not around. The fear of mistreatment is a real concern. Good workers are like hidden gems, and trust is hard-won. We even added cameras at home to ease our minds and check in on Jacob.
The Uncharted Territory of Autism Parenting:
So, here I am, in a season where most parents are battling empty nest syndrome. Not me, and guess what? I’m absolutely fine with it. My child needs me. Leaving him alone all day isn’t safe, even though he probably won’t set the house on fire. But you see, he can’t tell friends from foes.
To all my fellow autism navigators, let’s embrace the chaos, share a laugh about those “me” monsters, and remember, you’re not alone. We’re all on this wild, unpredictable autism island together. We’ll weather the storms and cheer for the small victories. If you need help with schedules check out this post: https://educatingjacob.com/how-using-schedules-can-change-your-childs-life/ Keep sailing, my friends! 🌊⚓🏝️
