#EducatingJacob

  • RFK Jr. HHS Secretary, those offended, Levels 2-3 Autism Affects the Family

    Advocate-for-Acceptance-Inclusion-and-Research-🧩-
    Honest conversations that include all autism experiences.

    How Levels 2-3 Autism Affects the Family

    Why is it that when someone speaks an uncomfortable truth about how severe autism affects families, so many rush to shut it down? 🤫

    Let’s be honest — families living with Level 2 and Level 3 autism are often carrying invisible weights. These aren’t just social quirks or a lack of awareness training. We’re talking about profound daily challenges that impact every area of life.

    We should be able to talk about what’s hard, what hurts, and what might help  without being shamed for it. Wanting to prevent suffering, or make our children’s lives more manageable, is not the same as rejecting who they are. It’s love in action. ❤️‍🩹

    The Statement That Ignited a Firestorm 🔥

    RFK Jr. is in the headlines again—this time for directly addressing the autism community in a way that has sparked intense reactions.

    During a recent appearance, Kennedy promised new studies with preliminary results expected by September, aiming to better understand the alarming rise in autism rates. He noted that in the early 2000s, autism affected 1 in 50 children. Today? It’s 1 in 36, with some reports citing 1 in 31. https://www.statista.com/statistics/1237464/autism-research-funding-united-states-by-nih/

    But it wasn’t these statistics that created the backlash. It was this statement:

    “Autism destroys families, and more importantly, it destroys our greatest resource, which is our children. These children who should not be suffering like this… These are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go on a date, many of them will never use a toilet unassisted.”

    His words were blunt. They were uncomfortable. And yes, they hurt many in the autism community.

    But as a mother of a 27-year-old son with moderate autism and epilepsy, I need to say something that might be equally uncomfortable:

    For many families like mine, he wasn’t wrong. ❤️‍🩹

    How Levels 2-3 Autism Affects the Family: A Reality Many Don’t See 👨‍👩‍👧‍👦

    I’ve spent decades in the trenches of autism—both as a mother and as a special education teacher. I’ve witnessed the spectrum in all its complexity. And I’ve watched autism rates climb steadily throughout my career, far beyond what “better diagnosis” alone could explain.

    The reality is that autism isn’t a monolith. It exists on a vast spectrum that includes:

    • Those who are verbal, employed, creative, and living independently
    • Those who need moderate support but can achieve meaningful independence
    • Those who require lifelong, 24/7 supervision and will never experience the milestones most take for granted

    My son Jacob falls into that last category. Despite decades of therapies, interventions, and unwavering love, he:

    • Cannot be left home alone 🏠
    • Will likely never live independently
    • Requires constant support for basic daily functions

    This isn’t because we haven’t tried. This isn’t because we don’t have hope. This is simply the reality of How Levels 2-3 Autism Affects the Family—a reality that’s exhausting, financially devastating, and yes, sometimes feels like it’s destroying the family unit. Autism Awareness Month! Parenting on the spectrum, no judgment here?🏝️

    Why We Feel Silenced: The Vaccine Conversation 🔇

    Let’s address the elephant in the room. Many parents like me have been effectively silenced when we mention our children’s dramatic regressions following vaccinations.

    To be clear: I’m not claiming all autism is caused by vaccines. I’m not even claiming my son’s autism was caused by vaccines. What I am saying is that many of us witnessed our children change dramatically after certain medical interventions. Maybe not the cause but there was harm. As parents we saw:

    • Children who had words suddenly lose them 💔
    • Children who made eye contact suddenly stop
    • Children who developed severe gut issues where none existed before
    • Children whose developmental trajectory took a sudden, dramatic turn

    And when we mention these observations—even gently, even as part of a complex conversation about multiple potential factors—we’re immediately dismissed with “correlation doesn’t equal causation” signs and accusations of being “anti-science.”

    But here’s what those critics don’t understand: We were there. We lived it. We watched our children change before our eyes.

    No one can prove to us that vaccines weren’t a contributing factor—just as no one can prove with certainty that they were. But dismissing our lived experience doesn’t help anyone, least of all our children who continue to suffer with communication barriers, sensory processing disorders, and medical complications.

    Government Transparency 🔍

    Another uncomfortable truth: many agencies that should be protecting us haven’t always been transparent about potential toxins in our medical interventions, foods, and environment.

    The history of public health is littered with examples of substances once declared “safe” that later proved harmful:

    • Lead in gasoline and paint ⚠️
    • Mercury in thermometers and dental fillings
    • Asbestos in building materials
    • Various pharmaceutical products later pulled from market

    I did whatever our doctor suggested when my boys were young because that’s how I was raised. I trusted the system completely. But over the years, my perspective has evolved as I’ve witnessed concerning patterns and learned more about regulatory oversight.

    It’s not “anti-science” to ask whether our regulatory agencies have been fully transparent about preservatives in vaccines, the dramatically expanded childhood vaccination schedule, or the cumulative effect of multiple interventions. It’s not wrong to wonder if we could do better as a country.

    RFK Jr.’s promise to investigate further doesn’t threaten neurodiversity—it threatens complacency. It challenges the notion that we should simply accept the status quo without asking hard questions about how we might prevent more families from experiencing what ours have.

    Beyond “Inclusion,Acceptance”: Why Some of Us Want More 🧩

    “Autism doesn’t need a cure, just acceptance and inclusion.”

    I’ve heard this refrain countless times and for some I believe that’s true. Their neurodivergence brings gifts along with challenges, and they rightfully want a world that appreciates their unique perspective.

    But for families like mine, dealing with the moderate-severe end of the spectrum, this sentiment feels dismissive of our daily reality.

    My son hasn’t been “robbed” of just social acceptance. He’s been robbed of:

    • The ability to tell me when something hurts 🗣️
    • The joy of a conversation where he can share his thoughts and feelings in detail
    • The comfort of eating without sensory issues making most foods intolerable
    • Freedom from obsessive-compulsive behaviors that consume hours of his day
    • Independence that others take for granted

    These aren’t just “quirks” that society needs to accommodate. They’re profound challenges that cause my child suffering every single day.

    Wanting to ease that suffering—wanting to understand what caused it and how we might prevent it in other children—doesn’t make me ableist. It makes me a mother who can’t bear to see her child struggle when perhaps those struggles could have been prevented.

    How autism affects the family goes far beyond needing more inclusive classrooms or workplace accommodations. For us, it means a lifetime of specialized care, medical interventions, behavior management, and constant supervision. It means planning for 50+ years of dependency and worrying what happens when we’re gone.

    The Moderate-Severe Autism Family Impact: Realities We Face Daily 📣

    When advocates called Kennedy’s comments “eugenic” or “setting the community back,” I have to ask: which community are they speaking for?

    Because while I celebrate every  person with autism leading a fulfilling, independent life, there’s another community being left behind in this conversation:

    • Parents changing adult diapers 👨‍👩‍👧‍👦
    • Siblings who’ve become default caregivers
    • Marriages crumbling under the financial and emotional strain
    • Families planning for 50+ years of dependent care
    • Schools struggling with limited resources for severe behaviors

    For us, acknowledging the devastating severe autism family impact isn’t offensive—it’s validating. It’s someone finally seeing our daily struggle.

    And when Kennedy promises research into environmental factors, rising rates, and potential causes, that’s not an attack on individuals with autism it’s offering hope to exhausted families desperate for answers. ✨

    Why “Just Genetics” Isn’t Enough 🧬

    The pushback against environmental research frustrates many parents like me. We’re told:

    “It’s just better diagnosis.” ❌ “It’s  genetic.” ❌ “We’re just more aware now.” ❌

    But those of us who’ve worked in education for decades have witnessed this explosion firsthand. I never saw these numbers of severely affected children when I began teaching. Now, special education classrooms are overflowing.

    While genetics may certainly play a role, the dramatic rise suggests something more complex at work, perhaps a gene-environment interaction that deserves serious investigation.

    The truth is, we know harmful substances exist in our environment, our food, and yes, sometimes in our medical interventions. These chemicals and compounds don’t affect everyone equally, some individuals are more susceptible based on their unique genetic makeup. Acknowledging this complex interplay isn’t anti-science; it’s the very essence of modern scientific inquiry.

    Wanting to understand why isn’t eugenic. It’s responsible.

    Moving Forward with Heart: Beyond the Division 💞

    I don’t write this to create more division in an already divided community. I write this because healing can only begin with honesty.

    For too long, parents of severely affected children have been silenced:

    • We’re told our observations about regression after medical interventions are invalid
    • We’re accused of not accepting our children when we seek to ease their suffering 😔
    • We’re labeled as “anti-science” for questioning whether environmental factors played a role
    • We’re told to focus solely on acceptance when our children need intensive interventions

    But we need to reclaim our voice, because our reality is valid too.

    Supporting research into environmental factors doesn’t mean we love our children any less. It means we want to prevent other families from facing the same struggles. It means we want better interventions for those already affected.

    And acknowledging the devastating aspects of how autism affects the family doesn’t diminish our children’s worth—it acknowledges their challenges and our sacrifices.

    Jacobs-heart-hands-say-it-all-we-are-here-to-advocate-for-Acceptance-Inclusion-and-Research-
    Let’s Love and show Kindness!

    A Path Forward: Beyond the Signs and Slogans 🛣️

    Here’s what I believe we need:

    1. Honest conversation that acknowledges the full spectrum of autism experiences—from mild to profound 🗣️
    2. Respect for parents’ observations about their own children’s developmental history
    3. Comprehensive research into both genetic AND environmental factors—without political biases
    4. Better transparency from regulatory agencies about what goes into our bodies and environment
    5. Support for those who are suffering without accusations of being anti-neurodiversity
    6. Recognition that wanting to prevent suffering is not the same as devaluing those with autism

    Because at the end of the day, this isn’t about RFK Jr. or political affiliations. It’s not about being pro-vaccine or anti-vaccine. It’s about families like mine who are moving through each day with a smile, trying our best to improve our children’s lives while carrying burdens few can understand.

    To the Parents Experiencing Severe Autism Family Impact 💪

    If you’re reading this while exhausted from another sleepless night with your severely autistic child…

    If you’ve ever watched your child struggle to communicate basic needs… 😢

    If you’ve been dismissed when sharing observations about your child’s developmental regression…

    If you’ve been made to feel like you’re “part of the problem” for asking questions about environmental factors…

    I see you. Your experience is real. Your questions are valid. Your observations matter. 👏

    You’re not alone in feeling that parts of Kennedy’s statements—however imperfectly expressed—spoke to your lived reality.

    And you’re not wrong for wanting answers, research, and solutions while simultaneously loving your child exactly as they are.

    Moving-Forward-Together-🤝
    Let’s Thrive Together in This Journey!

    Moving Forward Together 🤝

    We need an autism conversation that makes room for everyone:

    • Those thriving on the spectrum
    • Those moderately affected
    • Those severely impacted
    • The families supporting them all

    And most importantly, we need a conversation that respects parents’ right to share their observations and ask difficult questions without being labeled or dismissed.

    Because until we can honestly address the full reality of how all Levels of autism affects the family, including its most challenging presentations and potential cause we can’t truly support the entire community.

    It’s time to listen to ALL voices in this conversation, even when what they have to say makes us uncomfortable.

    If you’re raising a child who struggles every single day you’re not alone. If your child is like Jacob, and the world seems to forget about them I’m here for you. Join us inside Autism Thrive Tribe ✨, where we support each other through the challenges of how autism affects the family while celebrating every victory, no matter how small.

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  • Why I Started Educating Jacob: Support and Resources for Autism Families

    Educating Jacob: Support and Resources for Autism Families

    birthday-reflections-on-autism-blog-post@educatingjacob
    💙 To the parent feeling overwhelmed, exhausted, and lost—I see you.

    🎉 Today is a big milestone for me—my 60th birthday! 🎂 As I reflect on my journey, I feel called to share my story and why I started Educating Jacob. Being vulnerable isn’t always easy, but if my experiences can help even one struggling parent, then it’s worth it. Because I’ve been there—I’ve lived that fear, uncertainty, and overwhelming sense of not knowing what to do when my son Jacob was first diagnosed with autism. 💙 Visual Schedule Hacks for autism parents, Starting 2025 CALM!

    The Early Years: Fear, Confusion, and the Search for Answers 🧩

    Fear-and-Confusion-took-over-autism-diagnosis
    #ParentingWithPurpose #AutismSupportCommunity #AutismLife

    When we first received Jacob’s diagnosis, I was terrified. I had no idea how to help him. He would have meltdowns in public, struggle with changes, and his speech wasn’t developing the way his older brother Nicholas’s had. 😞

    I received hugs and kisses, but no “Mama.” The milestones I had celebrated so naturally with my first child weren’t happening. I started pushing doctors for answers, but I kept hearing:

    ❌ “Boys develop speech later than girls.” ❌ “He seems to be meeting his other milestones.”

    But deep down, I knew something was different. And so began the long waitlists, endless evaluations, and finally—the autism diagnosis.

    Now, I had an answer. But I still had no clue how to help my child. 🤷‍♀️ 4 Things I Wish I Would Have Known After Getting the Autism Diagnosis

    A Lack of Guidance, a Desire to Learn, and an Unexpected Truth 📚

    At the time, I had no mentors to guide me. I had wonderful women in my life—my mom, aunts, and friends—but none of them had experience raising a child with autism. There was no one to say, “Try this. This worked for my child.” I felt alone, desperate for support and resources for autism families.

    So, I made a big decision: ✅ I went back to school and earned a graduate degree in special education.

    I thought it would give me all the answers I needed to help Jacob. But here’s the truth:

    💸 Save your money.

    A degree didn’t give me the magic solution—because autism is a spectrum. No textbook could tell me exactly what would work for Jacob. I learned useful tools, but when it came to real life, it was still trial and error.

    Finding What Works: The Birth of Educating Jacob 🌱

    Over time, I started figuring out what worked—not just for Jacob, but for our family as a whole. I learned how to reduce anxiety, minimize meltdowns, and create a home environment that was calm instead of chaotic. 🏡✨

    Now, at 27 years old, Jacob’s life looks very different than it did back then. We still have challenges, but now we have a toolkit, a structure, and a way of doing things that brings peace instead of frustration.

    This is why I started Educating Jacob.

    I never want another parent to feel as lost, helpless, or alone as I did. If I can take everything I’ve learned—from raising Jacob, teaching other children with autism, and even homeschooling my own son—and pass that knowledge on, then I know I’m making a difference.

    My Mission: Helping Families Thrive, Not Just Survive 💙

    Join-Autism-Thrive-Tribe
    Raising a child with autism is challenging—but you don’t have to do it alone.

    I want to be the mentor I never had—for parents who are still struggling, still looking for support and resources for autism families, still searching for answers and guidance in the chaos of autism parenting.

    I want to tell parents: ✨ It gets better.You can do this.You don’t have to figure it out alone.

    And most importantly, I want to help families find what works. Because when life starts going wrong and nothing seems to be working, we have two choices:

    1️⃣ Keep doing the same thing and hope for different results. 2️⃣ Try something new.

    And trying something new is what led me to create the CALM Framework—the foundation of Educating Jacob: ✔ C: Consistent Action ForwardA: Always Celebrate WinsL: Learning to Create SchedulesM: Mindset

    These four pillars help guide families toward a life that is structured, peaceful, and full of hope. 🌟

    The Autism Thrive Tribe: A Community of Support 🤝

    One of the best things to come from this journey has been creating a community. I started the Autism Thrive Tribe to bring parents together—to support one another, share wins and struggles, and learn from each other’s experiences.

    If you’re an autism parent or a teacher trying to support a child with autism, I invite you to join us. Because no one should have to figure this out alone. 💙

    📢 Join here: [AUTISM THRIVE TRIBE]

    A Birthday Reflection: Gratitude, Hope, and Looking Ahead 🎂

    Today, as I turn 60, I look back on the years of struggle, learning, and growth—and I feel grateful. 🙏

    💙 Grateful for my son, for the lessons he’s taught me, and for the opportunity to share those lessons with others. 💙 Grateful that our home is no longer filled with anxiety and constant meltdowns—but instead, with structure, peace, and love. 💙 Grateful that I have the chance to help other families find that same hope.

    I won’t pretend that every day is easy. Autism parenting is a journey, and it comes with ups and downs. But I can tell you this—

    It is possible to find joy again.It is possible to go from surviving to thriving.And if you’re feeling lost right now, you’re not alone.

    I see you. I’ve been you. And I’m here to help. 💙

    Let’s Connect! 🌍

    If my story resonates with you, I’d love for you to join me: 👉 Join the Autism Thrive Tribe – A supportive group for parents navigating autism. 👉 Follow Educating Jacob – For tips, encouragement, and practical strategies. 👉 Explore the CALM Frameworks – Learn how to create a structured, peaceful life for your child and your family.

    On this special birthday, my wish is to bless someone else with what I’ve learned. Because together, we can make this journey so much easier. 💙

    With love and gratitude,
    Melissa Garcia
    Founder, Educating Jacob

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  • Heartbreak to Hope: A Mom’s Mission Teaching and Learning Autism.

    Problem-and-solution-askmelissa-autismparentingjourney
    I learned that confidence as a parent comes from having a plan and a support system.

    Autism Parenting Journey

    Educating Jacob began from a place of heartbreak—Jacob’s autism diagnosis left me feeling overwhelmed, exhausted, and uncertain about how I could give him the life he deserved. My mission of the autism parenting journey quickly became clear: to educate Jacob, help him thrive, and show him a world of love, stability, and possibility. In those early years, I was consumed by doubts and fears of falling short. But over time, with a plan, support, and my confidence restored, I found my footing.

    Today, our home is no longer filled with chaos, and Jacob is learning, growing, and thriving alongside us. This blog post isn’t just about our journey; it’s a message to moms like you, who may feel overwhelmed and uncertain. You don’t need a teaching degree to make a difference—you just need the right tools, a supportive community, and the confidence to keep going. I’m living proof that you can transform heartbreak into hope.

    Heartbreak to Hope: My Autism Parenting Journey 💙

    When Jacob was first diagnosed with autism, our lives were filled with uncertainty and chaos. I was consumed with questions, doubts, and a fear that I wasn’t enough for him. But along the way, I discovered that our autism parenting journey from heartbreak to hope wasn’t just about helping Jacob—it was about transforming myself, too. Today, I want to share what helped us move from overwhelming chaos to a life of calm and confidence.

    If you’re a parent struggling to find a way forward, I want you to know that you’re not alone. You’re more than capable, and with the right plan, a support system, and a little confidence, you can build a life of stability and joy for your family. How to achieve CALM on Autism Island, daily life on the spectrum.

    Step 1: Embrace the Power of a Plan 📅

    In the early days, I was overwhelmed, trying to tackle each new behavior, therapy, and challenge without a roadmap. I realized that to create any sense of calm, I needed a structured plan for Jacob and for myself. This plan became our foundation and the first real step in our autism parenting journey from heartbreak to hope.

    A plan doesn’t have to be complicated; start small:

    • Create a daily routine with a visual schedule. Even simple tasks, like morning routines or meal times, provide comfort and predictability for your child.
    • Break tasks into manageable steps so that both you and your child feel a sense of accomplishment with each step forward.

    Having a plan in place will help you feel more in control, and it gives your child a sense of security, knowing what comes next.  How are using schedules improving our autistic child’s daily life?

    Step 2: Build a Support System 🤝

    I quickly learned that autism parenting isn’t a solo journey. It takes a village, and connecting with others—friends, family, support groups—helped me feel less isolated. I found people who understood our struggles, cheered our small wins, and reminded me that I wasn’t alone in this journey.

    Ways to build your support network:

    • Join local or online autism support groups where you can ask questions and get tips from parents on similar paths.
    • Involve trusted family members in your routines and caregiving. The more they understand your daily life, the better they can support you.
    • Reach out to professionals like therapists or coaches if you’re feeling stuck. Sometimes a fresh perspective makes all the difference.

    Remember, your support network can help lift some of the weight you’re carrying, making it easier to be present and confident for your child.

    autism-parenting-journey-and-visual-schedules@educatingjacob.com
    They reduce overwhelm by letting your child see what’s coming up next, one task at a time.

    Step 3: Create Calm with Visual Schedules 📊

    Once I put a plan and support system in place, I focused on ways to create calm in our daily life. Visual schedules were an absolute game-changer for us. They gave Jacob a way to see what his day would look like, which lowered his anxiety and helped him navigate transitions.

    Why visual schedules work:

    • They reduce overwhelm by letting your child see what’s coming up next, one task at a time.
    • They make routines predictable, which provides security and calm, especially during new activities.
    • They empower your child to anticipate changes and understand that the day has a structure.

    With visual schedules, the days became less stressful for Jacob and for me, allowing us to enjoy our time together more fully.  Autism Diagnosis: My Home Was in Chaos and I Felt Like a Terrible Mom!

    Step 4: Celebrate Every Small Win 🎉

    In our autism parenting journey, I’ve learned that celebrating the small things makes a huge difference. Every small success—whether it’s completing a chore, staying calm during an outing, or following the visual schedule—is worth celebrating.

    How to celebrate:

    • Use positive reinforcement like a sticker chart or reward system that your child enjoys.
    • Celebrate with them by doing something small, like a happy dance, a high-five, or a special treat.
    • Reflect on your own wins as well. Take a moment to recognize your progress, resilience, and hard work.

    Celebrating small wins boosts confidence for both you and your child. It’s a reminder that every step forward counts, and each one brings you closer to a calmer, more joyful home.

    Step 5: Believe in Yourself as a Parent 💪

    The hardest lesson in my journey was to trust myself. I spent years feeling inadequate, questioning whether I was capable of being the mom Jacob needed. But as I watched our life slowly transform from heartbreak to hope, I realized that no one knew Jacob better than I did. I didn’t need a degree to be the best parent for him; I needed confidence.

    If you’re struggling, remember this: You are your child’s biggest advocate and greatest teacher. Trust your instincts, believe in your ability to provide the best for your child, and let go of the idea that you need to be perfect. Your child needs your love, patience, and guidance more than anything else.

    moving-forward-with-hope-autism-parenting-journey
    I’m here, sharing my story, so you don’t have to start from scratch.

    Moving Forward with Hope 🌈

    Our autism parenting journey from heartbreak to hope has taught me so much about resilience, love, and the strength I didn’t know I had. Today, our home is filled with routines, calm, and—most importantly—hope. Jacob is thriving, and I’m no longer overwhelmed by the chaos that once felt impossible to manage.

    To every parent in the early stages, feeling like you’re drowning in chaos: with a plan, a support system, and a little confidence, you can bring calm and joy back to your home. I’ve been in your shoes, and I know how challenging it can feel, but brighter days are ahead. You don’t have to walk this journey alone—I’m here, sharing my story, so you don’t have to start from scratch.  https://autismjourney.org/

    Let’s move forward together, from heartbreak to hope.

    Tips for Moving Forward with Confidence and Calm ✨

    Here are a few tips to help you continue on your journey from chaos to calm:

    1. Start with One Small Change
      Don’t feel pressured to transform everything at once. Choose one area of your routine to focus on, like introducing a visual schedule or setting up a consistent bedtime routine. Small changes add up, bringing calm over time.
    2. Seek Support When You Need It
      Remember, you’re not alone on this journey. Connect with other autism parents, support groups, or even an autism coach. Having someone to talk to who understands can make all the difference.
    3. Celebrate Your Progress
      Track your progress, no matter how small. Write down the wins and the breakthroughs, both for your child and yourself. Reflecting on these moments will remind you of how far you’ve come and help you stay motivated.
    4. Be Flexible, but Consistent
      It’s okay to adjust the plan if something isn’t working, but stick with your overall routines. Consistency provides comfort for your child and helps reinforce positive habits.
    5. Practice Patience and Self-Compassion
      Parenting a child with autism is a marathon, not a sprint. Be kind to yourself on tough days, and remember that each step, no matter how small, is progress. You’re doing an incredible job!

    With each of these steps, you’re building a calm, structured, and joyful home. Moving forward from heartbreak to hope isn’t just possible—it’s a journey you’re already on. Here’s to more peaceful, fulfilling days ahead for you and your family! 🌈

    🧐Struggling with daily routines and meltdowns? 🌟 As an autism parent coach, I help you transform chaos into calm.🌟

    📅Schedule a discovery call👉🏼 Comment CALL or DM me and I’ll send a link 🔗 

    Let’s work together to create a structured, peaceful home where your child can thrive.📚

    Book a coaching session today and start seeing real, positive changes in your family’s life! 💙 

    #autismandepilepsy #autismfamily💙#autismmom😎 #autismchallenges🧩 #AutismParenting #DoctorVisitSuccess #EducatingJacob #AutismSupport #CalmParenting #askmelissa

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  • Autism Diagnosis: My Home Was in Chaos and I Felt Like a Terrible Mom!

    My Home Was in Chaos

    Before Jacob’s autism diagnosis, doctors reassured us with comments like, “He’s meeting his other developmental milestones” and “Boys talk later than girls sometimes.” Jacob was 2 years old and still had no language. After a mom fit in the doctor’s office, they finally put in a referral for speech therapy. It took almost 6 months to get into the speech therapist covered by our insurance. After the first visit, she told me to get him tested and into preschool.

    autism mom worry, When I'm afraid, Psalm 56:3
    1 Corinthians 3:11 “For no one can lay a foundation other than that which is laid, which is Jesus Christ”

     

    Autism Diagnosis: The Fear 😔

    Researching autism and therapies!
    Researching and going to approved therapies for autism!

    My confidence as a mom plummeted, and the fear was real. My first son was perfect, with all the typical milestones. It took another 4-6 months to get Jacob tested for autism through the schools and Teacch, who were wonderful and conducted thorough evaluations over several days. The meltdowns at the testing sites stripped the rest of my confidence. I felt like I was being judged by everyone when they happened. I felt clueless.

    Navigating the Early Stages 🍼

    Meanwhile, I learned from watching the speech therapist. Jacob was not comfortable with anyone outside the family. No therapies or testing went well. Jacob was obviously upset to be somewhere other than home. He was a fussy eater, didn’t sleep well at night, frequently had ear infections, then tubes in his ears, and frequent bowel issues. Initially, we blamed the ear infections and eventually had his hearing checked.

    Our home was full of worry by this time. We knew something wasn’t right but didn’t know what or how long it would take to get a handle on it. Jacob now had full-on meltdowns as we tried to get speech therapy and more engagement with him.

    The Diagnosis and Initial Steps 🏫

    Jacob was very independent, probably because he didn’t have language to ask us for things. When Jacob started preschool, he did not engage with the other kids and only with the adults when he needed something. The official diagnosis came in, and Jacob was placed into a self-contained autism room. It was necessary because he had no success in the other room, and the teacher had no clue what to do with him. In the autism self-contained room, the teacher started him on a visual schedule from day one. But, there was only a limited time each child could have, and Jacob was really behind, so we started considering homeschooling.

    The Power of Visual Schedules 📅

    Today's Schedule, Jacob-educatingjacob.com
    Jacob’s earlier schedules could not contain more than 1 item per line.

    From that point on, we used visual schedules at home. I started going to the Teacch office, and they helped me build activities that Jacob could understand without needing language. Now, I can build schedules with work (activities) he needs to do to be a member of the family. He discovered he could learn, do work like the rest of the family, and have activities before movies, trains, toys, etc. Can a schedule help hyperactivity in toddlers? #Autism Challenges🧩

    Finding Our Rhythm 🎬

    It took years to figure things out, and Jacob is still not talking, but we started using movie quotes from movies he liked to see him light up. We were speaking his language. We also started using sign language, which really helped Jacob. Using his hands and the visual of watching someone complete a sign allowed Jacob’s brain to locate the word he wanted to say. He learned basic signs that we used while watching a show called Signing Time. 3 ways American Sign Language helped my son with autism speak in short sentences?

    Gaining Control and Peace 🧘‍♂️

    We have more confidence as parents and peace in the home now. Jacob has a schedule, he can communicate some of his wants and needs, he’s doing schoolwork and chores, and we also started homeschooling him and his brother.

    His brother, Nicholas, is now in graduate school and Jacob is grown and living at home with us today. He still does schoolwork, chores and shopping with us and he is able to do so with less anxiety using schedules. His day is chaotic and anxious without schedules. We are all much happier now.

    A Message to Other Autism Parents 💪

    To all the parents out there feeling the weight of an autism diagnosis and the chaos that follows, know that you are not alone. It’s a journey filled with ups and downs, but with patience, love, and the right strategies, you can create a structured and peaceful environment for your child. Remember, it’s okay to have off days. Just keep moving forward, one step at a time. You’ve got this! 💖

    Feel free to share your thoughts and experiences in the comments below. Want more information? Sign up for my ebook: https://educatingjacob.myflodesk.com/tfgvkumbkg Let’s support each other on this journey! 📢💬

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