Family Support

  • Uncategorized

    Feeling isolated, broke, and chaos within the family? You’re not alone!

    Autism Island: 

    Autism Island
    Autism Island, families feel like they are on an isolated island.

    Welcome to Autism Island! Feeling like you’re stranded here? Don’t worry, you’re in good company. It’s a place of isolation, occasional chaos, and surprise financial storms. But hey, we’ve got humor and camaraderie to navigate these turbulent seas of parenting a child with autism.

    Navigating the Island of Isolation:

    Sunday after church visits from friends!
    Sundays after church, time with friends and silly string!

    Ever had that moment when your child plays solo with no friends in sight? Yeah, we’ve all been there. Back in the day, I had these superhero friends who’d drop by after church. Kids played, and Jacob did his solo thing. Fond memories, but boy, do I get the isolation part.

    Now that all the kids are grown, there’s no one coming over after church to eat lunch and hang out. Going out with our friends are tag team matches between my husband and I.

    A Night on the Town? Easier Said Than Done:

    Smiles_family_fun
    Pic’s of the family over the years during summer!

    Thinking of a night out with friends or a family trip? Sounds easy, right? Well, toss autism into the mix, and it’s like embarking on a complex mission. New places, new routines – it’s practically a city of anxiety. And family gatherings? More like family stress-fests, with constant mental scanning for potential meltdowns or hidden dangers.

    Financial Rollercoaster:

    Financial Worries!
    Financial Worries!

    Now, here’s the sneaky monster – the cost. Therapies, treatments, some not even approved. Insurance? Nope, they just shrugged and left us drowning in bills. I still remember that bloodwork bill that could’ve bought a small car. We couldn’t afford it. Thank heavens for family pitching in!

    P.S. Insurance only covered speech therapy initially, and even that had co-pays. The struggle was real.

    Sharing the Load:

    Ever felt guilty about turning down invites? Let’s stop that nonsense! You’re not alone in the tag-team hustle with your partner. I mean, who wouldn’t love to hit the movies or kick back? But if it’s just not feasible, it’s not. We’ve all been there. Set some boundaries, drop that guilt, and grab a good book, run a soothing bath, or rent a hilarious comedy. You deserve it!

    Beach Trips and “Me” Monsters:
    Family Vacation!
    Family Vacation!

    Family vacations? Sure, we’ve done those. But it’s no leisurely stroll on the beach; it’s more like a 2.5-hour “Are we there yet?” chorus. And when you finally hit the sand, brace yourself for the inflatable alligator incident. Yep, the life of an autism parent is a unique adventure. Ask Granny Jane; she’ll regale you with tales of the inflatable alligator incident. Jake didn’t have one the first year, but guess who got him one the second year?

    The Support Dilemma:

    Respite care – sounds fantastic, right? Well, finding someone you trust, who truly understands your child’s unique needs, is like hunting for treasure. Autistic kids can’t always spill the beans on what happens when you’re not around. The fear of mistreatment is a real concern. Good workers are like hidden gems, and trust is hard-won. We even added cameras at home to ease our minds and check in on Jacob.

    The Uncharted Territory of Autism Parenting:

    So, here I am, in a season where most parents are battling empty nest syndrome. Not me, and guess what? I’m absolutely fine with it. My child needs me. Leaving him alone all day isn’t safe, even though he probably won’t set the house on fire. But you see, he can’t tell friends from foes.

    To all my fellow autism navigators, let’s embrace the chaos, share a laugh about those “me” monsters, and remember, you’re not alone. We’re all on this wild, unpredictable autism island together. We’ll weather the storms and cheer for the small victories. If you need help with schedules check out this post: https://educatingjacob.com/how-using-schedules-can-change-your-childs-life/ Keep sailing, my friends! 🌊⚓🏝️

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  • Blog, schedules

    3 ways to Generalize your child’s skills. Include family, friends and school.

    Help your child generalize skills learned.
    Help your child generalize skills learned.

    3 Clever Ways to Help Your Child’s Skills Travel

    Parenting is filled with triumphs. When your child learns a skill, it’s a win.

    But here’s the twist: we don’t want these skills to stay home. We want them to travel, to work anywhere, anytime.

    Welcome to skill generalization, where we teach your child’s skills to be flexible world travelers.

    Skills That Roam: Making Your Child a Skillful Globetrotter

    Imagine your child’s skill as a globetrotter with a passport. They’ve mastered it at home, but can they use it confidently at school or with friends and family?

    In this section, we’re exploring how to ensure skills don’t become homebodies. We’ll give you tips to help your child use their skills wherever they are. It’s like preparing them for a world tour, but instead of landmarks, they’ll showcase their abilities.

    Teamwork: School, Home, and Beyond

    When Jacob was in school, we became a team. It wasn’t just about his teachers; it was a group effort. We teamed up to help him learn and apply new skills, and it worked wonders.

    If you have a child on the autism spectrum like I do here is another blog post you may enjoy: https://www.autismsociety-nc.org/he-has-mastered-this-skill-at-home-why-doesnt-he-do-it-anywhere-else/

    Homework Time: Not Just for School

    We borrowed a page from Jacob’s school schedule playbook. After school, it was time for our version of “homework.” Dinner, cleaning up, tackling homework, getting that room cleaned (which, let’s face it, was a skill in itself), and, of course, brushing those teeth to dazzle the tooth fairy.

    If you need help and suggestions for schoolwork motivation and schedules check out my previous blog post: https://educatingjacob.com/slug-boost-homework-motivation-daily-schedules/

    Hashtag Family
    #family, #friends
    Family and Friends: The Support Squad

    Our family and friends became invaluable allies. They understood that Jacob needed support not just with speech and academics but also in play and social interactions.🤝

    So, when we visited or had gatherings, they joined the cause. They used schedules, they engaged with him, they ensured he felt included and supported. It wasn’t just us; it was a village effort. 👨‍👩‍👦‍👦

    Generalization: The Magic of Everywhere Learning

    The magic here is in “generalization.” It’s not enough for a child to learn something in one setting; they need to apply it everywhere. That’s what we achieved by creating a unified front.✨

    At school, at home, and with family and friends, Jacob was learning and using skills consistently. It wasn’t about different rules or routines in different places; it was about one set of skills that applied everywhere.

    The result? Jacob became a skillful globetrotter. He could navigate various situations with confidence because he had practiced those skills in different settings using his schedule.

    So, if you want your child’s skills to be versatile and work seamlessly in all areas of life, remember this: teamwork makes the dream work, no matter where you are. If you need social stories to help with family friends here is another place to look: [Link to Social Stories](https://eclkc.ohs.acf.hhs.gov/children-disabilities/article/social-stories) 📚

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