ParentingAutism

  • Why?My heart breaks watching autism parents living in chaos and crying!

    Parenting-a-child-with-autism-is-a-marathon-not-a-sprint
    Slow and Steady Wins the Race!

    Parents Living in Chaos 

    💔 As an autism mom, I’ve been there. I’ve felt the overwhelming heartbreak of not knowing how to ease my child’s anxiety, prepare them for family gatherings, or navigate sensory overload moments. Watching videos of parents struggling through Thanksgiving meltdowns or chaotic outings brings back memories of my own journey, and it breaks my heart.

    But here’s what I’ve learned over 27 years with Jacob: there is a better way. 🌟 With the right tools, mindset, and a few autism parenting tips, you can help your child understand boundaries, manage emotions, and embrace changes with less stress. It’s not magic, and it doesn’t happen overnight—but slow and steady wins the race. 🐢

    One of the most important lessons I learned early on was that Jacob would eventually grow bigger and stronger than me, so he needed to understand consequences and acceptable behavior while he was young. Autism isn’t an excuse for aggression or bad behavior—it’s an opportunity to teach and guide, helping your child thrive within the structure of love and boundaries. https://theautismcafe.com/raising-a-non-verbal-child-i-wouldnt-change-you-for-the-world-but/#google_vignette

    If you’re stuck in the chaos, overwhelmed by daily routines, and unsure how to manage tricky interactions with extended family or in the community, this post is for you. Let’s explore how to create calm, guide behavior, and bring peace to your family life. When we know better, we do better. 🌈 Together, we can move from chaos to calm. 💙

    moving-forward-with-hope-autism-parenting-journey
    I’m here, sharing my story, so you don’t have to start from scratch.

    From Reactive to Calm

    Parenting a child with autism is a journey filled with challenges, growth, and moments that test your patience and strength. 💙 I’ve been there—reactive, overwhelmed, and unsure how to guide Jacob through his meltdowns and behaviors. But over the years, I’ve discovered tools and strategies that have transformed our home, starting with one of the most powerful: visual schedules. 🧩

    In this post, I’ll share how we went from a young, reactive mom with no plan to a family that thrives with the help of visual schedules. Along the way, you’ll see how these tools became our way to communicate, reduce anxiety, and give Jacob the independence and confidence he craved.

    A Young, Reactive Mom: Learning the Hard Way

    When Jacob was first diagnosed, I was heartbroken. 💔 I didn’t know how to communicate with him or help him navigate his day. Without a plan, chaos ruled our home. I remember one particular trip to Walmart vividly. Jacob was cutting up in the cart, making my shopping experience miserable. I was frustrated, overwhelmed, and unsure of how to handle the situation. Stop trying old parenting! We Create Autism-friendly family traditions!

    That day, my young, reactive self grabbed a ping-pong paddle from the sporting goods section, marched Jacob to the bathroom, and gave him a couple of pats on the bottom. 🏓 It wasn’t my proudest moment, but it was where I was at the time—reacting to his behavior instead of teaching him how to manage it.

    As time went on, I realized this approach wasn’t sustainable. Jacob was growing, and I knew I had to find better ways to guide him, especially since he couldn’t understand long sentences or process complex language. I needed a way to communicate effectively with him that didn’t rely on words.

    A-mom-creating-a-visual-schedule-at-her-desk-showing-the-step-by-step-process-with-colorful-papers-and-markers
    I learned to put together a visual schedule and activities!

    The Turning Point: Discovering Visual Schedules

    One day, I read a story about a 15-year-old autistic child who had a meltdown in a theme park gift shop. 🎢 He was overwhelmed, and his mom was powerless to stop it. That story hit me hard. I didn’t want that to be Jacob’s future. I knew I needed to teach him consequences and help him understand his day in a way that made sense to him.

    When I pulled Jacob out of school to homeschool him, I discovered visual schedules. At first, I didn’t see how they could help. I thought, “How can creating little activities and a schedule make a difference when I can’t even have a conversation with my child?” 🤔

    But I gave it a try, and it changed everything.

    A-colorful-visual-schedule-pinned-on-a-wall-with-a-mom-pointing-to-it-her-child-attentively-watching-beside-her
    Visual schedules were a game changer and reduced anxiety.

    Why Visual Schedules Work

    1. They Reduce Anxiety 🛑
      Visual schedules show Jacob what to expect in his day, eliminating the uncertainty that often triggers meltdowns. When he sees his day laid out in simple steps, he feels more in control.
    2. They Build Independence 🚀
      By giving Jacob a visual guide for his daily tasks, he learned to complete them on his own. Over time, this gave him the confidence to tackle new challenges.
    3. They Foster Communication 💬
      Jacob struggles with language and long sentences, but visual schedules became our way to “talk.” They gave him choices and allowed him to understand expectations without feeling overwhelmed.

    Building Structure and Consequences

    Once we had visual schedules in place, we added routines and built-in consequences. If Jacob had a great week, he earned rewards like ordering a movie or game from Amazon on Fridays. 📦 If it wasn’t a good week, he didn’t get the reward, and we used the visual schedule to help him understand why.

    For example:

    • If Jacob didn’t complete his independent tasks, he would lose screen time for the evening. 📱
    • On challenging days, we’d point to something fun on the schedule, like decorating cookies 🍪 or watching a favorite movie 🎥, to redirect his energy and keep him motivated.

    The Transformation: A Calmer, Happier Family

    Visual schedules didn’t just help Jacob—they helped our entire family. The consistency gave us peace of mind, and the predictability allowed Jacob to thrive. Over time, I noticed fewer meltdowns, more independence, and a happier child who felt understood and supported. 🌟

    Today, Jacob’s visual schedule includes everything from daily chores to sensory breaks and special activities. He knows what to expect, and if something changes, he can see how it fits into his day. This structure has been life-changing for him and for us as parents. How to achieve CALM on Autism Island, daily life on the spectrum.

    Tips for Starting Visual Schedules

    1. Start Small 🌱
      Begin with tasks your child already knows and enjoys. Build confidence before adding more challenging items to the schedule.
    2. Be Consistent 🔄
      Stick with the schedule every day. Even when it feels tough, consistency is key to building trust and reducing anxiety.
    3. Celebrate Wins 🎉
      Acknowledge every success, no matter how small. Jacob loves his Amazon rewards on Fridays, but for younger children, a sticker chart or high-five can work wonders.
    4. Adapt as Needed 🔧
      If something isn’t working, don’t be afraid to tweak the schedule. Remember, it’s a tool to support your child, not a rigid rulebook.
    Why Visual Schedules Matter

    Visual schedules are more than just a parenting tool—they’re a bridge to better communication, reduced anxiety, and a calmer, more joyful home. They’ve allowed Jacob to learn, grow, and thrive in ways I never imagined when we first started this journey. Heartbreak to Hope: A Mom’s Mission Teaching and Learning Autism.

    So, if you’re feeling overwhelmed and unsure of where to start, I encourage you to try visual schedules. They transformed our lives, and I believe they can transform yours too.

    You’ve got this, mama. Slow and steady wins the race, and I’m here to cheer you on every step of the way. 💙

    🧐Struggling with daily routines and meltdowns? 🌟 As an autism parent coach, I help you transform chaos into calm.🌟

     

    📅Schedule a discovery call👉🏼 contact 🔗 

     

    Let’s work together to create a structured, peaceful home where your child can thrive.📚

     

    Book a coaching session today and start seeing real, positive changes in your family’s life! 💙

    Read More

  • 4 Things I Wish I Would Have Known After Getting the Autism Diagnosis

    4-Things-I-Wish-I-Would-Have-Known-After-Getting-the-Autism-Diagnosis
    We all need help and support on this autism journey.

    Autism Diagnosis Tips for Parents

    When I first heard the words “autism diagnosis” for Jacob, my world spun into chaos. I felt like I was fumbling through a fog, unsure of what to do or where to turn. I’m here to share autism diagnosis tips for parents. If you’re reading this, you’re likely on a similar journey, and I want to share four crucial lessons I’ve learned along the way. These strategies have been a beacon of hope and structure for our family, and I hope they can guide you too.

    Autism Tips for Parents Visual Schedules

    What I Wish I Knew:
    Visual schedules are a game-changer for children with autism. This is my big tip for parents getting an autism diagnosis.They provide structure and predictability, helping your child understand what to expect and when.📅 

    Why It’s Important:

    – Reduces Anxiety: Knowing what comes next helps your child feel more secure. For Jacob, having a clear visual schedule transformed his daily experience from chaos to calm. 🧘‍♂️

    – Improves Transition: Visual schedules make it easier for your child to move from one activity to another without meltdowns. Transitions became smoother for Jacob once we implemented this strategy. 🚦

    – Encourages Independence: Your child can learn to follow routines independently. Jacob learned to manage his own day, which boosted his confidence and autonomy. 🏆

    How to Implement:

    – Use images, symbols, or photos to create a daily schedule.
    – Keep it simple and consistent, especially at the beginning.
    – Gradually introduce more complex tasks as your child becomes comfortable.

    Tip: Start with a morning routine and build from there. Consistency is key!

     

    Build a Strong Support Network 👪

    What I Wish I Knew:
    You’re not in this alone! My next autism diagnosis tip for parents! Building a support network can make a huge difference for you and your child.

    Why It’s Important:

    – Emotional Support: Connect with other parents who understand your journey. This sense of community can be incredibly comforting. 🤝

    – Resource Sharing: Learn from others’ experiences and get advice on therapies and services. Other parents often have insights and tips that can be invaluable. 💡

    – Community Connection: Create a sense of belonging for your child and family. Having a support network helps everyone feel less isolated. 🌍

    How to Implement:

    – Join local and online autism support groups.
    – Connect with professionals who specialize in autism.
    – Reach out to family and friends for support.

    Tip: Don’t hesitate to ask for help when you need it. Support is a powerful tool!

     

    Prioritize Sensory-Friendly Environments 🧩

    What I Wish I Knew:
    Next, on my list of autism diagnosis tips for parents that battle sensory issues. Children with autism often have unique sensory needs. Creating a sensory-friendly environment can enhance your child’s comfort and ability to learn.

    Why It’s Important:

    – Enhances Focus: Reduces sensory overload, allowing your child to concentrate better. This was crucial for Jacob, who could become overwhelmed by certain stimuli. 🎯

    – Promotes Calmness: A calming environment helps regulate emotions and behavior. A peaceful setting can prevent or de-escalate potential meltdowns. 🌿

    – Supports Development: Sensory-friendly spaces can aid in learning and growth. Jacob thrived in an environment tailored to his sensory needs. 🌱

    How to Implement:

    – Identify your child’s sensory triggers and preferences.
    – Adjust lighting, noise, and textures in your home to suit your child’s needs.
    – Create a designated calm-down area with sensory tools and toys.

    Tip: A simple sensory bin or fidget toy can work wonders for self-regulation!

     

    Learn and Adapt with Your Child 📚
    Finding-your-rhythm-after-an-autism-diagnosis-is-possible
    Consistency and confidence will come with action! Always learning.

    What I Wish I Knew:
    Every child with autism is unique, and so is their journey. Be prepared to learn and adapt as you discover what works best for your child. Read  👉🏼Autism Diagnosis: My Home Was in Chaos and I Felt Like a Terrible Mom!

    Why It’s Important:

    – Individualized Learning: No one-size-fits-all approach exists. Each child’s needs and strengths are different. Jacob taught us that flexibility and adaptation were key. 🔍

    – Continuous Growth: Your child will change and grow, and your strategies should evolve too. Stay open to new methods and insights. 🌈

    – Parental Empowerment: As you learn alongside your child, you’ll become more empowered and confident in your parenting skills. 💪

    How to Implement:

    – Stay informed about autism research and therapies.
    – Be open to trying new strategies and tools.
    – Embrace the journey and celebrate the unique qualities of your child.

    Tip: Keep a journal to track your child’s progress and reflect on your own growth as a parent. Celebrate your wins too!

     

    Applying the CALM Framework to Our Journey

    When Jacob was diagnosed, we developed our CALM framework to guide us through the challenges:

    1. Consistent Action Forward (C)
    – Build routines and stick to them. Consistency helps create a stable environment that reduces anxiety.

    2. Always Celebrate Wins (A)
    – Acknowledge every success, no matter how small. Celebrating milestones fosters a positive atmosphere.

    3. Learning to Create Schedules (L)
    – Use visual schedules to bring peace and order. They help your child understand their day and reduce stress.

    4. Mindset Matters (M)
    – Embrace the journey with a positive outlook. Remember, you are your child’s greatest advocate. How does mindset change things when raising a child with autism? 🧩

    CALM-frameworks-for-educatingjacob.com
    CALM over Chaos and frustration!
    Final Thoughts 🌟

    Last, on my list of autism diagnosis tips for parents Raising a child with autism is a journey filled with challenges and triumphs. By applying the CALM framework—Consistent Action, Always Celebrate Wins, Learning to Create Schedules, and Mindset—you can create a nurturing environment where your child can thrive. Remember, you’re not alone in this journey. Together, we can build a brighter future for our children. 💙 Here’s a blog post about an adult diagnosis: https://www.duchessofneverland.com/home/autism-diagnosis

    Feel free to share your thoughts and experiences in the comments below. Let’s support each other on this journey! 📢💬 Want more info, download the ebook! https://educatingjacob.myflodesk.com/tfgvkumbkg

    Read More

  • Autism Awareness happened in April? Jacob’s Autism Education and schedule.

    Autism Awareness Happened in April?

    Autism Journey
    Follow our journey so you can learn from our mistakes and success’s!

    In a world where understanding and acceptance are vital, autism awareness isn’t just for April. Autism, a complex neurological condition, affects millions of individuals globally. Education empowers individuals with autism to develop their full potential by providing them with the necessary tools and skills to navigate the world. Parents do not have to have a specialized degree to help their child succeed! 🌟

    By embracing autism awareness and autism education, we create an inclusive society that celebrates diversity and fosters empathy. It enables educators, parents, and communities to provide appropriate support and intervention, enhancing the quality of life for individuals with autism.🧩

     

    Autism Spectrum Disorder (ASD) 📚

    Autism spectrum disorder (ASD) is a complex neurological condition affecting communication, interaction, and information processing. The spectrum means symptoms can vary widely among individuals. Some may have significant communication challenges, while others excel in specific areas like math or music.

     

    Jacob, my son, has faced significant challenges with communication and social interactions due to his autism. However, through tailored educational strategies, he’s made incredible progress in expressing himself and engaging with others.

    Sensory Processing Differences 🌈

    One of the key features of autism is the way individuals process sensory information. Many individuals with autism are either hyper-sensitive or hypo-sensitive to certain stimuli, such as sounds, textures, or lights. This can lead to sensory overload, which can be overwhelming and distressing. Understanding the sensory processing differences experienced by individuals with autism is crucial in providing them with the support and accommodations they need to thrive.Help! 3 Ways a schedule can help sensory issues and communication barriers? #Autism Challenges🧩

    Social Interaction and Relationships 🤝
    Create Social Interaction and Relationships for your child with autism🤝
    Create Social Interaction and Relationships for your child with autism🤝

    Another important aspect of autism is the way individuals on the spectrum approach social interactions and relationships. Jacob, for example, struggles with understanding social cues, reading facial expressions, and engaging in back-and-forth conversations. This leads to challenges in forming and maintaining friendships and relationships. However, it’s important to recognize that individuals with autism have a unique perspective on the world and can often offer valuable insights and contributions to their communities.

    Common Misconceptions About Autism ❌

    One of the most common misconceptions about autism is that it is a mental illness or a sign of intellectual disability. In reality, autism is a neurological condition that affects how an individual processes information and interacts with the world. Many individuals with autism have average or above-average intelligence, and their unique way of thinking can be a valuable asset.

     

    The Impact of Education on Autism Awareness 🎓

     

    Education plays a crucial role in unlocking the potential of individuals with autism. Accurate information and resources can dispel myths, combat stigma, and empower those with autism to reach their full potential. Educators, parents, and community members can better support individuals with autism by understanding their unique sensory needs, communication styles, and social challenges. The best schoolwork jobs and schedules for students at home in 2023!

    As a teacher who has a son on the autism spectrum, this would rally support to others in school who had difficulties. My students would come and tell me how they helped a student or informed another teacher of a student who was struggling because of their autism. They would then offer help or explain what they thought was wrong and how the teacher could help. It was amazing!

    For Jacob, education has been transformative. His visual schedules and structured routines have helped him understand his daily activities, reducing anxiety and improving his ability to transition between tasks.

    Promoting Autism Awareness in Schools 🏫

    Schools play a critical role in promoting autism awareness and creating inclusive environments for students with autism. By integrating autism education into the curriculum, schools can empower students to understand and appreciate the diversity of human experiences, including those of individuals with autism.

    Autism-Specific Training for Educators 🎓
    Autism-Specific Training for Educators 🎓
    We need trainings that will give hands on activities for students! (think visual schedules and work activites)

    One effective way to promote autism awareness in schools is through the implementation of autism-specific training and professional development programs for educators. These programs can equip teachers with the knowledge and strategies they need to create inclusive classrooms that cater to the unique needs of students with autism. This includes learning about effective teaching methods, such as visual supports, structured schedules, and sensory-friendly environments, as well as strategies for fostering social-emotional learning and positive behavior support. Check out this post: 👉 https://www.healthline.com/health/visual-schedule-autism

    Student-Led Initiatives and Awareness Campaigns 🎉

    In addition to educator training, schools can also promote autism awareness through student-led initiatives and awareness campaigns. This can include hosting autism awareness events, creating inclusive clubs or extracurricular activities, and encouraging students to engage in peer-to-peer mentoring and support programs. By involving students in these initiatives, schools can cultivate a culture of empathy, understanding, and acceptance, where all students feel valued and supported.

    Strategies for Creating an Inclusive Classroom Environment 🌟
    1. Visual Support: Implementing visual aids such as schedules and task lists can help students with autism understand and navigate their day. Jacob thrives with visual schedules that outline his daily tasks, making him feel more secure and in control.

     

    1. Sensory-Friendly Accommodations: Providing tools like noise-cancelling headphones or quiet spaces can help manage sensory input. Jacob uses noise-cancelling headphones to cope with overwhelming environments.

     

    1. Social-Emotional Learning: Teaching social skills and fostering peer support encourages empathy and understanding among students. Jacob has benefited from social stories that help him understand and practice social interactions.
    The Role of Parents in Supporting Autism Education 👪

    Parents play a vital role in supporting the education and development of their children with autism. Parents can work closely with educators and administrators to ensure their child’s educational experience is tailored to their unique strengths and challenges.

    One key responsibility of parents is to provide educators with comprehensive information about their child’s autism, including their communication style, sensory needs, and learning preferences. This information can help educators develop effective strategies and accommodations to support the student’s academic and social-emotional growth. Parents can also work with educators to create individualized education plans (IEPs) or 504 plans that outline the specific supports and services their child requires.

    Parents play a vital role in supporting their children’s education and development. Providing educators information about their child’s autism, such as communication style and sensory needs. This can help tailor effective strategies and accommodations. Collaboration between parents and educators creates a supportive environment that fosters growth and independence for children with autism.

     

    Jacob thrives daily using simple schedules that help him understand his day and our expectations. The schedules are a way to communicate and live independently for Jacob. He is able to have a day where he accomplishes work, chores, and interactions with his family and the community.  What if you have a plan for your child with autism? A Great Life.

    Resources for Autism Education and Awareness 📚

    There are resources available to support autism education and awareness, both for educators and the general public. These resources can provide valuable information, strategies, and tools to help create inclusive and supportive environments for individuals with autism. https://www.autismspeaks.org/

    Autism Society of America, a resource that offers educational materials, and support services for individuals with autism and their families. The organization’s website, https://www.autism-society.org, provides resources on topics such as early intervention, education, employment, and community engagement.

    Additionally, another resource is the National Autism Center,  focuses on evidence-based practices for supporting individuals with autism. The center’s website,

    Read More

  • Autism Diagnosis: My Home Was in Chaos and I Felt Like a Terrible Mom!

    My Home Was in Chaos

    Before Jacob’s autism diagnosis, doctors reassured us with comments like, “He’s meeting his other developmental milestones” and “Boys talk later than girls sometimes.” Jacob was 2 years old and still had no language. After a mom fit in the doctor’s office, they finally put in a referral for speech therapy. It took almost 6 months to get into the speech therapist covered by our insurance. After the first visit, she told me to get him tested and into preschool.

    autism mom worry, When I'm afraid, Psalm 56:3
    1 Corinthians 3:11 “For no one can lay a foundation other than that which is laid, which is Jesus Christ”

     

    Autism Diagnosis: The Fear 😔

    Researching autism and therapies!
    Researching and going to approved therapies for autism!

    My confidence as a mom plummeted, and the fear was real. My first son was perfect, with all the typical milestones. It took another 4-6 months to get Jacob tested for autism through the schools and Teacch, who were wonderful and conducted thorough evaluations over several days. The meltdowns at the testing sites stripped the rest of my confidence. I felt like I was being judged by everyone when they happened. I felt clueless.

    Navigating the Early Stages 🍼

    Meanwhile, I learned from watching the speech therapist. Jacob was not comfortable with anyone outside the family. No therapies or testing went well. Jacob was obviously upset to be somewhere other than home. He was a fussy eater, didn’t sleep well at night, frequently had ear infections, then tubes in his ears, and frequent bowel issues. Initially, we blamed the ear infections and eventually had his hearing checked.

    Our home was full of worry by this time. We knew something wasn’t right but didn’t know what or how long it would take to get a handle on it. Jacob now had full-on meltdowns as we tried to get speech therapy and more engagement with him.

    The Diagnosis and Initial Steps 🏫

    Jacob was very independent, probably because he didn’t have language to ask us for things. When Jacob started preschool, he did not engage with the other kids and only with the adults when he needed something. The official diagnosis came in, and Jacob was placed into a self-contained autism room. It was necessary because he had no success in the other room, and the teacher had no clue what to do with him. In the autism self-contained room, the teacher started him on a visual schedule from day one. But, there was only a limited time each child could have, and Jacob was really behind, so we started considering homeschooling.

    The Power of Visual Schedules 📅

    Today's Schedule, Jacob-educatingjacob.com
    Jacob’s earlier schedules could not contain more than 1 item per line.

    From that point on, we used visual schedules at home. I started going to the Teacch office, and they helped me build activities that Jacob could understand without needing language. Now, I can build schedules with work (activities) he needs to do to be a member of the family. He discovered he could learn, do work like the rest of the family, and have activities before movies, trains, toys, etc. Can a schedule help hyperactivity in toddlers? #Autism Challenges🧩

    Finding Our Rhythm 🎬

    It took years to figure things out, and Jacob is still not talking, but we started using movie quotes from movies he liked to see him light up. We were speaking his language. We also started using sign language, which really helped Jacob. Using his hands and the visual of watching someone complete a sign allowed Jacob’s brain to locate the word he wanted to say. He learned basic signs that we used while watching a show called Signing Time. 3 ways American Sign Language helped my son with autism speak in short sentences?

    Gaining Control and Peace 🧘‍♂️

    We have more confidence as parents and peace in the home now. Jacob has a schedule, he can communicate some of his wants and needs, he’s doing schoolwork and chores, and we also started homeschooling him and his brother.

    His brother, Nicholas, is now in graduate school and Jacob is grown and living at home with us today. He still does schoolwork, chores and shopping with us and he is able to do so with less anxiety using schedules. His day is chaotic and anxious without schedules. We are all much happier now.

    A Message to Other Autism Parents 💪

    To all the parents out there feeling the weight of an autism diagnosis and the chaos that follows, know that you are not alone. It’s a journey filled with ups and downs, but with patience, love, and the right strategies, you can create a structured and peaceful environment for your child. Remember, it’s okay to have off days. Just keep moving forward, one step at a time. You’ve got this! 💖

    Feel free to share your thoughts and experiences in the comments below. Want more information? Sign up for my ebook: https://educatingjacob.myflodesk.com/tfgvkumbkg Let’s support each other on this journey! 📢💬

    Read More