Autism and holidays

  • Blog, schedules

    How I made it through the holidays without chaos and anxiety on autism island.

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    Surviving the Holidays on Autism Island will require a plan my friend. The holidays, a time of joy, laughter, and… chaos? If you’re a parent navigating the festive season with a child on the autism spectrum, you probably know that the holiday script often comes with some unexpected twists. But fear not, fellow parents! I’m here to share my hilarious escapades and top tips on how I made it through the holidays without succumbing to chaos and anxiety on what I lovingly call ‘Autism Island.’ Who knew there was a real place, other than the homes of families who have a child with autism! Check this place out 👉 https://islandautism.org/about-us/island-autism-center/

    Surviving the Holidays on Autism Island

    Travel during the holidays can be a nightmare for anyone, let alone when you have a child with autism. But this year, I decided to take the road less traveled, literally. We stayed home. No packing, no planning, and definitely no airport meltdowns. It was a laid-back Thanksgiving and Christmas, and boy, did it take a load off everyone’s plate (pun intended). Jacob, my autism superhero, still followed his trusty schedule, but everything was decked out in holiday glory, making it extra fun.

    Now, if you do need to venture beyond Autism Island, a visual schedule is your golden ticket. It’s like a roadmap for your child, helping them understand what’s coming up ahead of time. Remember, familiarity reduces anxiety, and that’s the secret sauce for a meltdown-free journey. And don’t forget to pack a travel kit with all of your child’s favorite things, from activities to a bit of schoolwork. Hey, it’s a comfort thing, and it’s on the schedule, so it’s all good.

    Where Routine Meets Relatives on Autism Island

    Staying home for the holidays? Fantastic, right? Well, not according to Jacob. The moment I was off work for two weeks due to school break, he decided he wanted me back at work during week one! I mean, I do a lot for Jacob, but family being home when they’re supposed to be at work? That’s a plot twist he wasn’t prepared for. So, cue the calendar again to gently warn him of these schedule shake-ups.

    Surprisingly, he never tries to send his brother off to work or back home. Clearly we need strategy and planning to guide “Surviving the Holidays on Autism Island”. I guess his brother doesn’t mess with the schedule like I do! (Or maybe he’s just way cooler; who knows?)

    Surviving the Holidays on Autism Island. Jake's brother Nick never gets sent back to work
    The ‘cool’ brother! He is always asking for his brother to come home.

    Making the Holiday Fun: When You’re Running on Holiday Fumes

    Foot pain, Morton's neuroma
    Electrical Stimulation to relieve pain and swelling!

    Let’s talk about making the holiday fun on Autism Island. I confess; I could’ve done better this year. With a bum foot and exhaustion levels that could rival a hibernating bear, my enthusiasm didn’t quite match Jacob’s holiday energy. But fear not, all the traditional holiday activities were in play. Jacob had his favorite holiday movies, cookies, and more, so we were good to go.

    Jacob gets a say in decorating and picking out holiday treats because having choices makes the holiday experience more enjoyable for him. Involving him in these decisions also helps him feel in control and engaged with the family.

    Sensory Sensibility: Navigating the Tides of Sensory Overload

    A-little-planning-goes-a-long-way
    Pack the sensory friendly clothes, work and headphones!

    Sensory overload? It’s the iceberg to our holiday Titanic. Always think of sensory issues and plan ahead. Comfortable clothes, noise-canceling headphones for those anticipated loud visitors—anything to keep sensory overload at bay is a winner.

    I’ve learned not to force Jacob into activities if he’s showing signs of anxiety. Instead, I steer him toward something more comfortable, letting him rejoin when he’s ready. Pushing him to stay at the Christmas tree opening presents isn’t a good idea if it leads to a meltdown. He can take a break and return when he’s calm.

    Every holiday doesn’t have to be a mirror image of the last. We’ve learned to set boundaries, keep things fun, and be open to schedule changes and regrouping.

    So, here’s to surviving the holidays on Autism Island with humor, love, and a pinch of flexibility. It might not always go according to plan, but when has that ever stopped us? Cheers to holiday adventures, Autism Island-style! 🎄😄

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  • Blog, schedules

    Autism and the Holidays: Shaping the Season with a Positive Mindset

    autism and holidays, Relax with a date night to kick off the holiday month!
    Date Night! #ZachWilliams

    Ah, the early years of dealing with autism, how to have autism and holidays? The days were a rollercoaster of emotions – anxiety, stress, depression, and yes, let’s not forget the ever-present financial strain from therapies not covered by insurance. But hey, welcome to the world of parenting a child with autism, right? https://www.autismspeaks.org/blog/home-holidays-ways-make-sure-your-autistic-child-enjoys-their-break

    Rolling in the Memories 🎢

    family and christmas time
    Jacob’s dad David and Older brother Nicholas!

    Fast forward a couple of decades, and I’ve not only survived numerous family holidays but also successfully guided my students through adapting to change and finding joy along the way.

    From those early, challenging years to the present day, I’ve learned that having a plan and setting boundaries for myself and my son can turn the holiday season into a time of joy and happiness. I’ve realized that, just like my son, I need structure during this bustling time of year. It’s all about keeping my own days from falling apart, because when they do, well, let’s just say it’s like inviting old pals Anxiety, Stress, and Depression back into my life. And we’re not on speaking terms anymore! Let’s make a plan for autism and holidays. Why these 3 boundaries are desperately needed for my autistic son?

    The Jolly Watchlist 📺

    autism and holidays, Movies we watch in December!
    Movies we watch in December!

    I absolutely adore the holidays, but I’ll be the first to admit that my decorations don’t rival a winter wonderland anymore. My mental bandwidth sometimes resembles a traffic jam, and I don’t always have the time and energy for elaborate decor. But I’m working on it! I do cherish those twinkling lights, and I’m the first one to set up the Christmas tree, queue up the holiday movies, and plan Advent activities to teach Jacob about the birth of Christ.

    Movies like “It’s a Wonderful Life,” “While You Were Sleeping,” “Heat Miser, Snow Miser,” “The Grinch,” and “Home Alone” are like little parcels of joy. They infuse the holiday spirit into our hearts and remind us that this season is about warmth, love, and laughter.

    Set Boundaries, Savor Moments 🎁

    So, what’s the secret to keeping your holiday spirits high? Have a plan, and set boundaries. Not everything that comes your way needs a ‘yes.’ For instance, I’ve learned that taking Jake to bustling, noisy places or disrupting his routine doesn’t bring me joy; it brings stress. So, as much as I’d love to say yes to every invite, I have to prioritize his needs and have a caregiver in place when I can’t be there.

    Don’t feel guilty about your boundaries; embrace them, and savor the moments. Inside, I decorate to create a festive atmosphere, watch heartwarming movies, bake cookies, and sip hot cocoa.

    Self-Care Is the Best Gift 🌟

    I’ve also learned the importance of self-care, not just professional development. I indulge in reading for pleasure, especially action-packed books – a brief escape from the daily challenges of being a boy mom. Long baths are a luxury I occasionally treat myself to. Finding time for exercise is a goal I’m still working on. After a day filled with special needs at home and school, I often suffer from decision fatigue and every other kind of fatigue imaginable. But I’m learning to plan better, particularly for meals and exercise.

    In the end, it’s all about maintaining that positive mindset. With a plan, boundaries, a touch of self-care, and a sprinkle of holiday joy, the holiday season can be a time of joy, even for parents of children with autism. So here’s to embracing where you are and enjoying life, one festive moment at a time! 🎄🧡 #positivemindset How Jacob has success daily without anxiety. #autismchallenges

    Holiday Mindset 🎄
    autism and holidays, Advent activities for Jacob!
    Advent activities for Jacob!

    So, as we dive headfirst into the holiday season, remember, don’t compare your life or your child’s journey to anyone else’s. Celebrate where you are, and how far you’ve come. Life is a unique journey, and no two paths are the same. Keep a journal if it helps; it’s a wonderful way to witness the progress you and your child have made over the years. Here’s a previous blog post if you want more tips: 5 ways to regain my calm when my special needs child is dancing on my last nerve!

    Through all the highs and lows, the challenges, and the laughter, we’re moving forward. We’re blessed with the opportunity to love, learn, and grow with our extraordinary children. 🌟📖💪 #movingforward #blessed

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